For anyone living with hemophilia, and especially children, it is a good idea to develop an emergency care plan if spontaneous bleeding does occur. Dr. Sridharan recommends working with a hemophilia treatment center to guide treatment and care. You can find and contact regional hemophilia treatment centers through the CDC’s online directory., Hemophilia is rare, so it's vital to get an accurate diagnosis and treatment. Mayo Clinic has been designated a comprehensive hemophilia center by the Centers for Disease Control and Prevention. People who are treated at comprehensive hemophilia centers usually have fewer bleeding complications and hospitalizations., Mayo scientists are also studying the molecular genetics of hemophilia. This promising field of study may lead to gene therapy in the future. Publications. See a list of publications about hemophilia by Mayo Clinic doctors on PubMed, Diagnosis & treatment Care at Mayo Clinic. Aug. 29, 2023 Print., Los casos graves de hemofilia suelen diagnosticarse en el primer año de vida. Las formas leves pueden no ser aparentes hasta la edad adulta. Algunas personas se enteran de que tienen hemofilia después de sangrar excesivamente durante un procedimiento quirúrgico. Los análisis del factor de , Mayo Clinic Rochester's Hemophilia Treatment Center (HTC) provides specialty care to patients with a bleeding disorder. The center provides whole-patient care, including: Diagnosis; Disease and symptom management; Coordinated care with other Mayo Clinic specialties (if needed) On-site coagulation lab All tests can be done on site with quick results, Early treatments for hemophilia involved whole blood transfusions from healthy donors. Before blood was screened thoroughly, many hemophiliacs ended up contracting HIV/AIDS as a result of tainted blood donations. Unfortunately, my uncle, who was also a hemophiliac, contracted HIV as a result of bad blood and passed away when I was only five..