In the United States, more than 100,000 people are living with sickle cell disease. Sickle cell disease is a group of inherited blood disorders that affects hemoglobin (the protein in red blood cells that carries oxygen throughout the body). Sickle cell disease is a lifelong illness that can lead to stroke, eye problems, infections, and episodes of extreme discomfort called “pain crises.” While people who have sickle cell disease are physically affected, this illness is also a financial strain. , People with sickle cell disease (SCD) often face high healthcare costs. Paying for care costs from hospital visits, medical procedures, and prescription drugs can be costly. Health insurance in the United States is especially complicated and can be expensive., This toolkit is designed to help sickle cell disease (SCD) warriors and advocates know the basics about insurance coverage. This resource can help you understand options, keep costs lower, and appeal denials of coverage. HEALTH INSURANCE BASICS & Advocating for Appropriate Coverage While each insurance plan is different, no health insurance .